Went to Coriell today with the guys from SNPedia for Coriell’s version of a “spit party,” and enrolled in their “Personal Genomics Collaborative”. This is a large (10,000+ individuals, aiming for 100,000+) fishing-trip data gathering study with a very different twist from 23andme. It’s totally free to participate, and in return, I don’t get my raw data. However, as results are vetted by a review board, they will release the “clinically actionable” facts about me, to me. The hope is that this very large pool of data will kick off some of the clinically relevant findings that have thus far been sorely lacking from the genomic revolution.
Met the lead folks, saw the lab, and very nearly got a tour of the machine room. Spent some time talking with a developer on the web interface they’re gonna use to gather additional data from me. A good time all around.
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