{"id":1941,"date":"2008-05-02T09:50:00","date_gmt":"2008-05-02T04:50:00","guid":{"rendered":"http:\/\/chris.dwan.org\/?p=1941"},"modified":"2008-05-02T09:50:00","modified_gmt":"2008-05-02T04:50:00","slug":"the-media","status":"publish","type":"post","link":"https:\/\/chris.dwan.org\/?p=1941","title":{"rendered":"The Media"},"content":{"rendered":"

I read a blog post<\/a> on scienceroll asking for volunteers to speak on-camera about their genetic testing experiences. I emailed the contact, like this:<\/p>\n

From: Me
\nDate: Thu, 1 May 2008 08:59:24
\nTo: Them
\nSubject: Personal genetic tests<\/b><\/p>\n

I saw a post on the web that you are interested in talking to people
\nwho have gotten online gene tests.<\/p>\n

I recently received my results from 23 and me, and I would be happy to
\ntalk about why I chose them and how the experience went.<\/p>\n

-Me<\/code><\/p>\n

The response made their intentions clear:<\/p>\n

From: Them
\nDate: May 1, 2008 11:37:05 AM EDT
\nTo: \"Me\"
\nSubject: Re: Personal genetic tests<\/b><\/p>\n

Hi,<\/p>\n

Thanks for your reply. We're looking to interview someone who's been wronged by genetic testing. Someone who for example has brought their test results to their doctor for interpretation and help going forward, but been met with resistance since, as you probably know, their doctor wasn't part of this process. If your experience was in any way similar to what we're looking for, please let me know.<\/p>\n

Thanks.<\/code><\/p>\n

So I sent this back:<\/p>\n

Ah. Okay then, I probably don't fit what you're looking for. I was a very informed consumer. While I've been disappointed with some aspects of the process, I don't think I'm nearly angry enough to meet your needs.<\/p>\n

In your specific example, one of the reasons that I like my doctor is his willingness to explore new technologies with me. He and I have a good relationship, and I feel comfortable bringing in outside information and working with him to figure out its relevance to my life. I think it's sad that people would feel intimidated about sharing information with their physicians! Far from being \"wronged\" by the testing company, shame on those doctors!<\/p>\n

Good luck in your search.<\/code><\/p>\n

As put it: We’ve decided what news we want to report, facts be damned!<\/p>\n","protected":false},"excerpt":{"rendered":"

I read a blog post on scienceroll asking for volunteers to speak on-camera about their genetic testing experiences. I emailed the contact, like this:<\/p>\n

From: Me Date: Thu, 1 May 2008 08:59:24 To: Them Subject: Personal genetic tests<\/p>\n

I saw a post on the web that you are interested in talking to people who have . . . → Read More: The Media<\/a><\/span><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[1],"tags":[],"_links":{"self":[{"href":"https:\/\/chris.dwan.org\/index.php?rest_route=\/wp\/v2\/posts\/1941"}],"collection":[{"href":"https:\/\/chris.dwan.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/chris.dwan.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/chris.dwan.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/chris.dwan.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1941"}],"version-history":[{"count":0,"href":"https:\/\/chris.dwan.org\/index.php?rest_route=\/wp\/v2\/posts\/1941\/revisions"}],"wp:attachment":[{"href":"https:\/\/chris.dwan.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1941"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/chris.dwan.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1941"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/chris.dwan.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1941"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}